I'm an advocate for my son who has been diagnosed with 3 neurological disorders; arachnoid cyst, hydrocephalus and syringomyelia. I want everyone to know about my son's story because he was misdiagnosed and even accused of pretending to be in pain! No family should have to go through what we've endured. He's had 2 major brain surgeries and more for shunt revisions. His symptoms are real and debilitating. He acquired syringomyelia due to the delay in treatment and the complications from his first surgery that almost killed him. He had vision issues from his arachnoid cyst for the most part has been reversed since treatment. His cyst also affects the area of his brain that controls the ability to process, sequence and recall verbal information. He will only be able to gain back some of this functioning and will continue to struggle in this area. My entire life is devoted to helping families going through the same thing we did while seeking treatment.
My favorite things to cook
I like all foods and love to try new things. Ever since my son has been affected by his neurological disorders we have switched from cow milk products to alternatives and cut out some of the gluten intake. Ever since then my son has fewer onsets from his syringomyelia.
My favorite family cooking traditions
Starting a new traditions, no cow milk products. I put turmeric in almost everything I cook to help with inflammation. My goal is to become more self sufficient and be able to grow all the food for my family. I'm raising my first flock of 7 chickens and 3 ducks, and want to be a full fledged urban homesteader.
My cooking triumphs
Making gluten free recipes that taste just as good as your "regular" recipes.
My cooking tragedies
My brother came to visit and I was so excited to be able to cook FRESH eggs for the first time, we've never had them before. So I'm cracking the eggs and we're comparing how much brighter the yolk is and clearer the whites are, then I crack one open that doesn't quite plop right in the bowl, the whites are cloudy , I look and there's veins on the side of the shell! Gross! I'm a city girl, trying to get used to a "country" way of life...