Weird Health---Aldosterone - Sticking my neck out to be chopped---- Blog at - 112697

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Weird health---Aldosterone 
Jul. 11, 2009 8:23 am 
Updated: Sep. 16, 2012 3:22 pm
I have had high blood pressure for several years that cannot be controlled with blood pressure meds due to my aldosterone levels are high making my blood pressure like a serious yo-yo.  This morning I took my BP after my aldosterone regulating med was 187/125 scared the heck out of me---any body have this weird hormone problem---if so--what is your treatment?  Doc says this condition is 2% of population---just hoping to find another to help with what to do---I have a special needs Son born with Apert's syndrome that I need to be around for---for as long as I can---don't want to end up having a stroke/heart attack and family having to care for or bury me too soon-----------I am writing this because Doc finds my condition to be a major puzzle---------My son is 26 living in our finished basement--hubby is 61, me 52---
Jul. 11, 2009 8:37 am
Wow! That is scary. Can it be treated with diet? My husband has high blood sugar so we have cut out caffeine & salt as much as possible. Luckily, his is controllable with meds. I hope you find someone else to brainstorm with!!
Jul. 11, 2009 9:48 am
Thank you so much Scotdog with your reply! No, cannot be controlled by changing diet as far as the Docs know. I strongly feel it has somewhat to do with the change of life but Docs think 'maybe a little' but not the cause. Is your hubby on meds? If not and you are controlling the blood sugar by diet that is exceptional!
Jul. 11, 2009 10:14 am
He's on meds for both the high blood pressure & diabetes. He would like to get off the diabetes ones, but high blood pressure runs in his family so he will always be on those. He's feeling good though. Hope you can figure something out!! Did the high blood pressure start when you were older? Mine is still low, thank goodness!
Jul. 11, 2009 10:16 am
Oops, I just realized I put high blood sugar up there instead of pressure! What a dumbo!! Oh well, we deal with both so it's an understandable typo ♥
Jul. 11, 2009 10:43 am
I am not quite sure when my high bp began because I was too busy taking my son to his 7 different docs 50 miles away 4 days a week--so as most all Moms do, we neglect ourselves---I finally got really, really sick lasting over a week about 6 years back, (46 yrs. old), and went to the doc---potassium was very low, heart rate and bp very high--I guess the thing that irks me the most is I have been a runner for 32 years trying to keep myself healthy for my family and this aldosterone thing---not only can I not do anything about but docs are stunned also---I sure hope your bp stays low--I really do think that for the most part it is hereditary. I have high bp in my family but Docs don’t think it relates to me—my hubby as I stated is 61, his bp runs about 111/78---so I would think you have great chances of maintaining your low bp---I feel extremely fortunate that hubby’s bp is exceptional!!
Jul. 11, 2009 11:01 am
Wow! Sorry I'm no help. More people read the recipe exchange than the blogs so you might post this question there. Not many on right now, but on a usual week night it gets busier. Several are nurses so maybe you'll get luck with someone who has heard of it. It can't hurt. I'm going to google now to see if I see any good sites on it. God Bless!!
Jul. 11, 2009 11:09 am
Thank you for this info as I am so new to blogs---I will check out recipe exchange! Thank you again, God be with you!
Jul. 11, 2009 1:14 pm
This is really high! Have you checked a second opinion? You never know, sometimes another doctor may have a different treatment.
Jul. 11, 2009 1:42 pm
Sounds like you need a specialist. There must be doctors, or at least one doctor somewhere, who treat lots of cases and would be up on all the possibilities. At the very least your doctor should be consulting with someone who really knows about this. I hope you find what you need to keep yourself healthy for your family.
Jul. 11, 2009 7:19 pm
I have a family history on both parent's side of high blood pressure & high cholesterol. I didn't have any problems with either until my hormones started waning. I'd try hormone replacement therapy to see if that helps if I were you!
Jul. 11, 2009 8:14 pm
From what I just read it would seem like it is very important for you to stay well hydrated. I also found this link hope you can connect with someone whi can help you. Have you seen an endocrinologist?
Jul. 12, 2009 5:49 am
Thank you all for your suggestions. Yes, I have had the opinion of my primary doc, kidney doc, endocrinologist and many 'wondering' docs when I was in the hospital and all docs that I have encountered find me to be a mystery---yes Virginia Mom--I will talk with my doc about hormone replacement--that is what I have been thinking probably started this whole ordeal---thinking maybe because my docs are all men they just don't want to consider the change of life---It might be a good idea for me to find a female doc---thank you all again for your response, you have all helped especially by driving me to think in different directions as well as think 'deeper'! I appreciate you all! Thank you for the, BigShotsMom---I had no clue there was such an organization--
Jul. 13, 2009 8:25 am
Wilemon, If your bp gets like that again, get thee to the hospital! When the bottom number (diastolic) gets to be over 90, it's not good. When it gets over 100, very bad, and over 110, it's an emergency. You need an experianced endocrinologist who subspecializes with adrenal disorders stat. I doubt this is related to the 'change', as this hormone is made in the kidneys and not related to the ovaries. I'm assuming you've had an MRI, and CAT scans at the very least. Get copies of those and get more opinions. Do not stop until your on a treatment plan that stabilizes this. Your family depends on you.
Jul. 14, 2009 6:59 am
Thank you so much for this excellent advise marynlc. I go back to my DO Thurs. and will ask him to refer me to an endocrinologitst.
Aug. 15, 2009 4:08 pm
Wilemom, Probably you are really tired of all the advice. Maybe. But think of me as your (slightly) older sister. And an RN. I totally get the WTF factor. Went through the change a few years ago -- HATE IT! Took HRT for a year and it made my hair fall out! Not that I had a lot, anyway. I've been on B/P meds for a couple of years, but don't have the aldosterone thing, and am, in fact, going to look it up. I had some serious chest pain 2 years ago and my MD had me do a treadmill stress test. When my B/P hit 230/180 he called it off saying that I won the high B/P contest. Been on meds since. Meanwhile, I married a man 12 years younger who has children the ages of my grandkids. Still living a sedentary life, and wondering when and how it's going to be taken away. Guess we all need to eat better. Trying to make changes in DH diet. I could live on chicken... and growing some veggies. I know that if I cook it, he will eat it. I know that diet is not an answer. And I guess that you are physically active. I try to just cross my fingers, tell my peeps that I love them, and hope that when it's all over, I'm in a good place. If I can do anything..... Life comes at you sideways. I'm scared about my health and getting older really sux!
Aug. 16, 2009 9:26 am
Hey Valorie, yep, seems I was fit as a fiddle until the life changes and yes, getting older sux big time especially when you have to worry about your health. Yes, I am physically active; I run the treadmill 5 days a week for 30-45 minutes depending on my schedule. I have had angioplasty(sp), many EKG's, stress test, and all came out good---I am scared about my health too--seems to never fail when I get ready to go to the grocery store my BP will spike and I have to lay down. My son goes with me to the store, that bothers me a bit because I drive a standard Jeep Wrangler so if something goes wrong with me a simple stepping on the break is not so simple. I just ask God many times a day to keep my body safe. I think we both might be better off to not think about our demise and I have been working on that but am not there yet---thing is, I feel so helpless because I have no control over my body other than taking my meds---I am betting life will get better for us if we could force ourselves to allow only good thoughts to hang around in our heads---like I said, am working on it! I very much appreciate your response, thank you!
Sep. 6, 2009 10:26 am
Hi Wilemon, life is not easy for us women after a certain age.... is it? I too have my problems, five coronary bypasses, gastric bypass, stroke, heart attach, etc. etc., however I feel very well and try not to think about all my health problems. I come from a very small family, no cousins, etc., and have one younger brother who is very sick and me is all he has. I have nothing to recommend to you for your specific health problems, just to add myself to your list of virtual friends, we need to stick to each other!! I live in Santiago, Chile, however I lived in Bethesda, Maryland for a few years 20 years ago. I have two children and three grand-children, the cherry of my life! Today is our wedding anniversary, 40 years, wow!! We were married in Washington, D.C. A big hug to you and your son, and the best of luck. Remember that positive thinking is very important, sometimes it is all we need to have a happy life when we cannot change things.
Oct. 4, 2009 12:04 pm
Hi Wilemon, It is weird that I accidentaly came across your blog. I have high bp too, and especially high in the morning. I was looking online yesterday to try to figure out why this is, and I kept coming up with this aldosterone. I have never heard of it before, but my doctor has done all kinds of tests to figure out why I have bp, and has found nothing. I quit smoking and that didnt seem to make a difference. I am trying to eat healthier and use less salt. I will see if that will help. I am going to be asking my doctor about aldosterone. I am 48, consider myself otherwise healthy. I do need to lose some weight, but I excersice regularly. I wish you the best of luck, and if I found out that this is the cause of my high bp, I will let you know. Thanks for the info, I wish you all the best of health.
Oct. 5, 2009 7:32 am
Yes, please ask your doctor about aldosterone as it is very rare and it took about 6 years to figure the aldosterone thing out. They still don't know WHY my aldosterone is high. I forget, but it has something to do with renin/kidney/adrenal gland. Doc thought by removing the adrenal gland that was producing the most aldosterone would cure me---it didn't, so a piece of advice; if it is suggested you need an adrenal gland removed, ask to try a med called spironolactone first. This med has my aldosterone back to normal thus far. If I had known what I know now I would never have had my adrenal remove because it has really affected my energy level, that coupled with being almost 53, menopause--energy is quite low--Please keep in touch about this--what I have endured may keep you from going down that same path. Don't let this scare you because my life is now 'normal' just lacking energy. I also exercise 5 days a week. My e-mail>>
May 21, 2010 6:17 am
wilemon - As my sister tells me (she's disabled) getting older is not for the faint of heart. Wikepedia has a lengthy spiel on aldosterone. I would pursue alternate opinions and a good endicronologist. I'm mix 60's and was always in good health. Tonsils out at 10 years old & polio then also. 2 yrs ago I had a pulmonary embolism out of the blue; last yr a severed primary, and torn secondary rotator cuff, and this year hit w/ Giant Cell Arteritis which has caused lost of sight in my right eye.during all of this I noted an increase in BP, but have addressed that with a cocktail of Benicar 2x25mg, enalapril 1x20mg, and Simvastin 2x40mg. My bp is running 100/74 now and I am pushing to drop some of these and monitor. A decent home cuff helps and you can take your own BP every few days. Good luck in your pursuit, food & exercise help a lot so keep them in mind. prayers & good wishes are here for you and yours.
Judy H 
Jul. 19, 2010 1:22 pm
Wilemon- I, too, had HBP for many years and the drugs did not agree with me and caused me to be tired all the time. I am not a runner but a daily walker and take realtively good care of myself - the HBP was a mystery. Anyway, I finally studied exhaustively re HBP and realized that I cannot eat stimulants (coffee, chocolate, sugar, and salt) and so I stopped those and started eating better. I also monitor my BP everyday. I feel so much better - My BP is now 128/80. I would advise you to get a copy of Reversing Hypertension by Dr. Julian Whitaker. I also had adrenal burnout so I take B complex twice a day plus a potassium/magnesium combo and plenty of calcium - all things good for your heart and circulation. I believe in the concept that you can heal yourself if you stop doing what is causing the problem in the first place. In your case, maybe it does have to do with the hormonal picture as mine all started around that time also plus I was under a tremendous amt of stress too. I have done transdermal progesterone for a few years. Anyway, I hope all this makes sense and you can take something from it. Good luck and good health.
Nov. 3, 2010 6:41 pm
My friend once consumed a lot of garlic - it is popular to eat with some cuisines here in China, especially Xinjiang food (the northwest of China) and his blood pressure dropped so much he could not get out of bed the whole next day. I had never heard of this either but it really happened. He must have eaten at least 30 cloves of garlic though. I had never heard of this before his experience. I'm not advocating to do this as a therapy because I am no doctor but I am a person who is very interested in diet and food as medicine.
Nov. 10, 2010 9:01 am
Thank you for this information Bonny! It is a good thing I love garlic! Thank you again!
Jun. 1, 2011 7:51 pm
Dr. Jan Mcbarron columbus Ga. M.D. N.P. extremely knowledgeable call her Georgia bariatrics. Harry.
Jul. 2, 2011 5:27 pm
I am not sure this is a possibility, sister years ago when she was in her 30's all of a sudden had uncontrollable high BP. She was healthy, very active, thin, didn't reason for high BP. She went to local docs for 3 years and it kept getting worse. Finally she went to Mayo Clinic and they immediately diagnosed it as a blocked renal artery. They put a stent or balloon in the artery and her BP went down to normal immediately. Hope this is your problem as it is an easy fix. Good luck!
Jul. 2, 2012 1:53 pm
thats what i was going to say,MAYO is the best around .they use teams of doctors to find the answers.
timothy richards 
Sep. 16, 2012 3:22 pm
you might consider garlic, as I'am aGarlic producer in michigan, as well as heart patient, diabetic/ 2... open heart ( 2 ) I have 106 yr. old generation,heirloom, organic.excelant for h/b. most any remedy,check
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