My Littlest Bestest Friend! - Ewe's Not Fat; Ewe's Fluffy! Blog at - 183920

Ewe's Not Fat; Ewe's Fluffy!

My Littlest Bestest Friend! 
Jul. 4, 2010 9:45 am 
Updated: Nov. 19, 2010 6:55 am
I am the babysitter for neighbors that have a 13 month old cutie pie with Downs syndrome.  I've been keeping her since she was about 8 weeks old.  She is bright-eyed, alert, happy and a smarty pants, for sure.  Her eyes twinkle and she loves to laugh; mostly at her silly G'ma Gail (that would be me). 

Over the months I've taught her to "Patty Cake", to say Hi, to do Peek-a-boo, and when I say "one, two three, clap our hands" she claps her little hands along with me.  She has 3 teeth now.  Her eyes are as big and beautiful as a cloudless summer day.  My littlest bestest friend jumps from her mommy's arms to come to me when mommy brings her to me before she goes to work.  Not  because she likes me more than her mommy.  Gosh no.  It's because I am her biggest bestest friend!

We have our girl chats and it seems we talk a lot.  I'm in her face telling her all sorts of things like, what I'm cooking for dinner, what I wish I was cooking for dinner, I read to her from her favorite little books, I read stories from her child's bible stories, I read to her from the newspaper and I put great emphasis into my readings.  The joy I get when I see her little mouth forming sounds, not the words just yet, but the sounds that she saw me make when I was talking my sillyl head off.  I laugh.  She makes my heart swell with such love for such a tiny little person.  G'ma's can do that and not look silly at all.  G'pa Buddy (my DH) gets down on the floor with her and "helps" her strum his guitar while he sings to her.  I gotta tell you, now HE looks silly!!  We love her so much.  She's a big, big part of our family.

A couple weeks ago my littlest bestest friend had what we thought was a heat rash of just a few tiny pinkish brownish dots on her skin around her neck and at the nape of her neck just down from her hairline.  It has been super hot here with temps hovering around 102 on several days so we figured it was heat rash, kept her cool and the dots would fade away and come back but fade away again.  We also thought that since mommy had taken her off formula and put her on soy and almond milk that maybe she was allergic to tree nuts.  So it was back to formula to make sure it wasn't an allergy. 

A few days later she decided she wasn't going to drink her formula.  Mommy goes to our farmers market and buys the freshest veggies grown within a 75 mile radius (county requires this for farmers markets) so the veggies are "local".  She brings them home, steams them, puts them through a veggie thingy that grinds them up and makes her own baby food for our angel.  She loves her veggies and gobbles them down heartily; spinach, green beans, edamame, beets, lima beans, watermelon, yogurt, blueberries baked potato that has been mashed up for her is a favorite along with organic bananas. 

She went for her 12 month check up and was pronounced fit as a fiddle, healthy as a horse.  Her blood was tested, as I'm told all infants are now tested, for lead content.  She passed with flying colors.  She had those 3 dreaded shots in her little leg but it never phased her.  A slight temp the day after but still sweet spirited and in no apparent discomfort.

A day or two after she turned her cute little nose up at her formula she quit eating.  I managed to get 1/2 of a banana in her the day mommy was taking her to pediatrician to see what was going on and why she had developed a swelling around her right eye.  Still not cranky but not as "perky" either.

I waited at home for mommy's phone call.  The appointment was at 2 PM.  Mommy called at 4:05 PM.  The sounds I heard over the phone continue to echo through my brain.  They were not human sounds; more like a gutteral utterance of a wounded animal.  A mom under seige from unknown sources.  My heart sank.  I screamed mommy's name, "WHAT?"  PLEASE TELL ME...

All I could hear was "BONE CANCER"!!!  I remember dropping to my knees praying and asking God to take away this horrible moment where we were suspended in total agony. 

Mommy brought my bestest friend to my house and my 14 year old grand daughter took the baby who was in her carseat away from mommy because she had collapsed onto my sofa.  We had to wait for daddy to come from his job in Maryland to Spotsylvania.  No easy trek and a good 2 to 3 hour drive depending on the traffic.  Don't forget, Thursday was the beginning of the 4th of July holiday and traffic, on a good day in this area along I-95 is a BEAR!  

Meanwhile, mommy was able to tell me that our angel's spleen was swollen and her white blood count was off the charts!  The pediatrician wanted her taken to UVAMC  PICU  ASAP so she could be seen by a hematologist for further evaluation and admittance to that facility.  Okay, in English... UVAMC is University of Virginia Medical Center located in Charlottesville, VA with one of the finest PICU and NICU's anywhere in the country.  Oh, PICU? Pediatric Intensive Care Unit, NICU? Neonatal Intensive Care Unit.  Not being a newborn our angel would be admitted to the Pediatric Intensive Care Unit or PICU.

When they arrived the angel was taken for a bone marrow biopsy, and she has been diagnosed with ACUTE MYELOID LEUKEMIA!  be still my heart....

She has had her first blood transfusion and her color is back to normal.  They did a spinal tap to see if any cells were in her spinal fluid.  Don't know about that yet.  They did a pickline for all the bloodwork that is required and she has had her first induction treatment.  This morning mommy said she was sitting up, with no apparent effects as yet, asking for food (we taught her to sign for things like food, bottle, thank you, please, the easy stuff) and happy and very alert.   

Apparently the prognosis of this disease is an 80% survival rate for children with Downs syndrome.  I have searched the internet for information and have tried to get myself educated in this field.  It is amazing how this works.  I've learned that all those little things going on the week or two prior to her being diagnosed were actually signs of the disease.  Of course, no one knew her spleen was swollen  until after it was pointed out.  You could not only feel it but see it once you knew where to look.   In order for the 80% to be effective, my littlest bestest friend has to stay in the hospital during the induction cycle which takes 4 to 5 weeks and she can come home for a week in-between these cycles but she then has to go back to the hospital for another 4 to 5 weeks and this goes on for about 8 months!  In children without Down syndrome and over the age of 4 years, it can take up to 2 years of being in and out of a hospital.

Mommny's job (the one with the insurance coverage) is a 2 hour ride from the hospital and she cannot take a great deal of time off from work.  Somebody has to pay the bills.  Daddy's job is being much more lenient and allowing him to work when we have someone with the angel.  I will be with my bestest girlfriend 3 or 4 days out of the week, plus every other weekend so mommy can work, daddy can get rested and go to his work but she will not be alone.  My DD has also volunteered to stay with the angel on her day off from work.  We're covered in that department.

I guess what we're not covered in is the uncertainty; the waiting, the worrying, the wondering.  How sick will she be from all the poison being introduced into her perfect little body?  Will it cause other organs to fail? blindness? brain damage?  These things we have placed in God's hands because it is simply too much for us to handle, let alone comprehend.  Faith and trust in The Great Physician.  We pray for strength and courage to face the days and months ahead.  To face them with a smile on our face so we can let my littlest bestest friend know that everything is still okay in her world.  She has now become our teacher.  Through her we will learn much and we will grow with her.  We will not consider any other option. 

She has brought us great joy, laughter, love, peace, humility and patience.  A new understanding in the love of a child with special needs.  How blessed we are to have her!

If you get a minute we'd love for you to say a prayer for my littlest bestest friend. 

Go give your little treasures a big hug and let them know how very special they are to you!!

God bless.



Today is July 8 at 2:50 PM (ET).  Mommy just brought me these photos to post and to let you know that Kira has successfully had her last induction for this series. Only 6 more to go.  She will remain in the hospital so she can be daily monitored for blood levels, etc.  Her red count is up and near normal so she will not have to have another blood transfusion.  As you can see, she's a happy, little girl with a winning smile.  We know that your prayers have been heard.  We feel the grace of God that allows us yet another day with this child and all of us are so appreciative of your love and support and prayers for this little family.  The next 8 months will be rough but thanks to you and all the people who join us along this journey, we know we are not alone!  I just can't thank you enough.  God bless you.  Love and hugs, Gail

UPDATE:  July 11, 2010
This is a message that Tracy sent to everyone on her mailing list :  Hello everyone I just wanted to let you know Kira is doing ABOVE THE CURVE!! for her treatment she is not suffering side effects as of yet, of course this could change at any moment.  The next 2wks are critical.  If her white blood cells don't go down enough during this time she will have to have a bone marrow transplant!! 
I just spent 2 days with Kira at the hospital and as far as current treatment and results, she seems to have taken all the pokes, jabs and God knows what else in great stride.  Every 12 hours she has to have an injection, given in her leg; left leg, then the right leg, alternating legs each time.  It burns, according to the nurses, and to Kira.  The nurses know that Kira has figured out what they came into her room for and you can see her little body go tense. They give her the shot as quickly as humanly possible and you grab Kira up into your arms and her crying stops in just a few short seconds (to me, it is agonizingly long!).  Then there's the medication she has to have orally.  OMG, if only I could take it for her!  Crying babies have always been my weakness.  Can't stand it.  Crying babies in the grocery store will cause me to leave and come back at a later time, okay?  So you can imagine those poor nurses trying to console Kira AND me!  The liquid meds by mouth have got to be the biggest hurdle for her in her line of treatment. 
Another thing we learned was that she might lose her hair.  I will probably make a crocheted cap or two for her if I can find a cute, but simple, design.   That was something we hadn't given a lot of thought to.  It isn't something any of us want to think about.   The crocheting will keep me busy.
I took lots of pictures.     The photos on my phone I haven't taken off yet, but will share as soon as hubby does that for me.  Trust me, I am not that tech savvy!   I can screw  up a mud pie so I have to let the inhome genuises do that stuff for me!!

What kind of fun can you have in a hospital crib?  I dragged out all her toys and dumped them in the crib so she could reach them.  Her little xylophone got a royal workout as she serenaded everyone on the floor.  I carried her little songs home with me.  I can still hear them.  I miss her. 
Please don't forget to keep her in your prayers and from the bottom of my heart, "thank you" for keeping her before our loving God and all the saints that surround Him and Kira!!
For those of you who have visited us at< your messages resonate with such warmth and we cherish all your good wishes for Kira and her family!!!
UPDATE: JULY 20, 2010
We were told last week that if Kira's white count remained steady, she would be allowed to come home for perhaps a week, as of today!  her "neutrofills" are back down and coming home is not an option.  Certainly not today.  She's still a strong-willed little girl and I do so admire her.
She has to have a shot at 11 AM and again at 11 PM I mentioned in a previous update. Well, now she barely makes a sound when she gets the injections.  She takes it all in stride.  She still laughs, still gives her great big smiles to perfect strangers and totally wows the therapists that come to work with her.
We never know how long these precious gifts of a life will be entrusted to our care but I do know that while they are here, God has given us an extraordinary means of self-evaluation, of an extended education, a lifelong lesson in humanity and all that is good in His eyes by way of this tiny little girl. 
For continuing to leave comments of encouragement and prayers at our caring bridge site, we are humbled by your presence!  Thank you and God bless!
UPDATE:  JULY 21, 2010
Everyone was waiting, holding their breath, for the doctors to finally come onto the floor to give Tracy the news as to whether or not Kira could come home for a few days.  I don't think any of us play the waiting game well.  I was going to keep her at my house so mommy and daddy could work at their jobs for the few days she would be able to be away from the hospital.  We had spent a great deal of time sanitizing anything and everything she could possibly come in contact with.  My 14 yo grand daughter, Haylee, was walking around with the Lysol wanting to know what else she could clean!  She had washed with a few drops of bleach, all the toys Kira has here and everywhere Kira might be playing; that Pac n Play will never be the same! 

You clock watch. You wait and then the phone rings.  It's the "first, the good news...
Tracy called to let me know that my bestest little bud would not be coming home.  Although this round of chemo worked (there are no cancer cells in her bone marrow biopsy), her neutrofills (trust me,  I had to google this one) were not at the level where they felt Kira could fight off an infection or a virus.   There are many people that wanted to see her and were so anxious to have her come home.  But, you know, I woke up this morning and before my feet hit the floor, I silently gave thanks to God that the doctors have such insight as to make the decision that although she is doing well where the cancer is concerned, the side effects of the medication have weakened her immune system to the point that they were too worried about her safety and wellbeing to not let her leave the hospital.  I was truly saddened that she wouldn't be here yet I was grateful that they were able to make the right decision for Kira. 
Then, it's the "bad news... how could I look at it as "bad news"?  Someone made a decision to keep her safe.  I miss her so much.  I am sad, but... she is where she needs to be!
Oh well, another day, and our prayers continue.   
July 21, 2010
Voices such as these expressed here help me sleep at night. Voices such as yours help me put everything into proper perspective and deal with reality. There is going to be a benefit concert for Kira at her family's church on July 31. I was asked to get all her photos onto a CD so that they could put the pictures to music. The music they will use is "In the Arms of an Angel". I didn't know that until I delivered the CD to the church tonight.  Most of you know that that's the song sung about the dogs in rescue kennels/dog pounds (I think) and I just come totally unglued every time I hear it.  I'm having her first birthday photo of her doing her "So Big" enlarged to life size and it will sit on an easel near the alter at the front of the church.

Mike Harvey, God love him, has provided a thread on his blog for Kira at caring bridge. If you haven't been and would like to... it's:    We'd love to have you stop by. 

Sometimes I feel as though the walls are closing in and I come back here and read your comments. It helps, believe me, it truly helps!

Once more, THANK YOU!  SouthernGma
UPDATE: July 29, 2010
We are constantly amazed at the profound effect your comments have had on all of us where you have shared your feelings and continued your prayers for this baby.   I never quite feel that I have said "THANK YOU" enough, that I haven't been diligent in acknowledging each and every comment.  I've just prayed that God would let you know that you will always have a place in my heart for the wonderful words you have written and the tremendous hand of caring you have shown and extended to us.  All of you!! And, Mike Harvey, with all you've been through and yet you kept our story alive and encouraged everyone to go to our site at   Thank You!
I went to UVAMC yesterday Tuesday morning and stayed until about 5:30 yesterday afternoon.  The doctors came by Kira's room at around 9:30 yesterday morning and said that her retrophils were high enough and everything else looked good enough to warrant allowing Kira to come home for a few days!  Oh how we have prayed for that moment.  We are so greatful that our prayers were heard.  However, I must admit that we feel that somehow it is a mixed blessing and we simply must renew our faith and put it in the healing hands of the Father!  While Kira is at home, she must be protected from any possibility of a virus or bacteria because of her lack of immunity , the chemo did that, and her vulnerability of coming in contact with something that could cause her temperature to spike.  Any temperature is cause for great concern and she MUST, I can't stress that enough, as the doctors said, MUST be taken back to UVAMC within the hour!  She has approximatly 1 1/2 hours of time to get back so that they can save her life from any threat of virus or bacteria that may have caused  contaminattion and UVAMC is almost exactly 1 1/2 hours away!  Thus, the double edged sword.  Leaving  her in the hospital, isn't in accordance with  the insurance company... yeah, that other can of worms;  so, you get her well enough to go home for 3 or 4 days, sterilize everything possible, don't let anyone in the door and don't even think about taking her anywhere!  We even worry about mommy and daddy coming in contact with someone who may have a cold or the makings of a cold, such as sniffles.  For Kira, it could be life threatening. 
There is a benefit concert this Saturday night for Kira and her parents at their church and although there are hundreds of folks that want to see her, we're trying to decide WHO is going to stay home with her while the parents go to church (of course, my hand went up).  Who do they hug?  How close is the nearest bar of soap?  Did you hear that sneeze?  We oftentimes think of how the parents of the "Boy in the Bubble" must surely have felt.   Yet, you go on.  You do the very best you can possibly do and regardless of what happens, you will be plagued with guilt for perhaps not doing enough, not knowing what else to do.  We spell stress with all caps!!!
While I was with the Princess, we laughed, talked, played, and I told her about you guys and the comments from the best well-wishers ever.  In doing so, I tried to turn it into a silly story of sorts and sounded like a dog guarding a bone and she laughed so hard they heard us at the nurses station and came to see what was so funny.  It was 10 minutes after MIDNIGHT, gang!  It was party central.  Yesterday was not a great day for my littlest budster.  Since she was being discharged to come home for a few days, of course, they had to do labs, poked, prodded, took blood, swabbed her mouth (normal for those receiving chemo to prevent sores from forming inside the mouth), and she really didn't want any part of it.  Didn't want to eat, not an everyday occurrance for her, thankfully, but not really wanting anything I offered and Lord knows the list was long.  I just held her.  She went to sleep on my shoulder as I sat in the most uncomfortable recliner on the planet.  We were there for nearly 4 hours in that chair.  The nurses/techs would come in to do vitals and see that she was resting peacefully, wave at us and whisper they'd come back later.  Some did.  Some didn't.    On Monday night I recharged the batteries for my camera so I could take a ton of pictures, and walked off and left it!  I only took one picture with my cell phone and that was while she was sleeping.  The Sleeping Beauty. 
I haven't seen her today.  I know Mommy and Daddy are happy to be able to exhale.  They've held their breath for a long time.  She is at home and home is only 2 doors away!

Smile of thanks to AR Buddies!
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AR Folks Give us Reasons to Smile!
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Surrounded by love and caring people!!
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Mommy and Kira say "Thank You" to their new friends at AR!!
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July 10, 2010 Make my day with sweet smiles!
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Sweet dreams Little One.
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Our girl is SO BIG! First Birthday
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Jul. 4, 2010 10:10 am
SG: It's official. My heart is broken.
Jul. 4, 2010 10:11 am
Strength to YOU as well as her and her Mom and Dad. Doing what I can!
Jul. 4, 2010 10:25 am
What a special comment, bikerfamily. Thank you! Swiss Phil, I've always wanted to call you "Sweet Phil". Thank you so much!!
Jul. 4, 2010 10:36 am
Bless your heart. My prayers will be with that beautiful angel. Lord Jesus please heal that wonderful little girl!
Jul. 4, 2010 10:54 am
I'm bawling. My heart goes out for all of you. Will say a few prayers, hug my granddaugther and call the others. May God perform his miracle for your littlest bestest friend. Love yall Deana
Jul. 4, 2010 11:04 am
God bless you and the family and that sweet little girl. Praise and Glory be to God for the joy and blessing she has brought to your lives. Father, I pray for Your gracious hand of healing on this dear child. Please shower her and her family with your mercy, love and strength. You are the giver and creator of life. The great physician and all of our lives are in Your hands. We thank you for this little girl and for the privilege of knowing her and knowing You better through her. Please fill these loved ones with Your Holy Spirit and touch them in a special way today and in the days to come. In Your Son's Holy name I pray - Amen.
Jul. 4, 2010 11:18 am
I'm crying G'ma, I ask that the God(dess)s, whichever ones you follow, be they old or new, one or many, are kind to this beautiful little girl and her family, and also to you wonderful lady. Keep your chin up.
Jul. 4, 2010 11:27 am
This is the first time a blog at AR made me cry. Only good thoughts heading your way.
Jul. 4, 2010 11:41 am
SG - Phil rang me to tell me. Dear little girl and poor parents. And as Phil says, poor you and your DH. I have nothing more that I can say, I can just send whatever I can through the ether to you and them.
Jul. 4, 2010 11:51 am
Oh my gosh!..I am sitting here with tears running down my face. What a lucky family they are to have you as their childs 'bestest' friend. And I have a feeling you are THEIR 'bestest' also. Please keep up informed of her progress!!.
Jul. 4, 2010 11:52 am
That should be us..not up
Jul. 4, 2010 11:59 am
Bde strong my friends, and may only good positive things happen for you and your angel! Thanks for such a moving story. Hrz with much love and gratitude
Jul. 4, 2010 12:25 pm
I'm crying and my heart is breaking. Thank you SG, for sharing your bestest little friend with us so we can help by sending healing prayers to all of you. &hearts;
Jul. 4, 2010 12:38 pm
Thank you, SG for sharing this heartbreaking story with us. Give your littlest, bestest friend a special hug from me today and know that she, you and her family are all in my prayers that the Heavenly Father will surround you all with his healing love and power. That His peace will cover you and give you strength. Much love and ((((ahugs))) to you all...Ginny
Jul. 4, 2010 12:42 pm
I'll be thinking of her and of you. What a wonderful person you are, to care so much for this little one and her family.
Jul. 4, 2010 1:01 pm
My DH is wondering why I'm sitting at the laptop with tears running down my face. Hugs to you and your littlest bestest friend. That family is so lucky to have you and your hubby. Blood doesn't make family, love does. Keep us posted.
Jul. 4, 2010 2:36 pm
I, too, have tears running down my face. I'm sending prayers and best wishes to you and your little angel.
Jul. 4, 2010 5:45 pm
My heart is heavy. Saying prayers. Poor little angel.
Jul. 4, 2010 8:07 pm
Well, now I'm sobbing again. Your messages of comfort and support have touched my heart. We are all grateful for every single one of you. I did create a web site at Caring Bridge and will keep updates for all to read. Please stop by and say Hello. As I said in My Story, friends and family will circle the wagons around this baby and that's going to help me sleep peacefully tonight. I can't thank you enough!!
Jul. 4, 2010 8:22 pm
Wowsa, just know that you and your little angel are both very special people!! Thoughts and prayers to you both!!
Jul. 4, 2010 8:41 pm
Those Downs Syndrome babies are God's most special angels that he shares with us. I've known many it's almost impossible to describe the love that they exude. I will pray night and day that this little angel's body is healed so she can stay here and teach us all so much more about life and how to love. You and her family are also in my prayers for peace and strength.
Jul. 4, 2010 8:43 pm
my heart breaks for her parents and the bestess friend she could have. my goodness...please know that this situation will remain in my prayers. my prayers count double, someone told me, because i'm not very religious. but believe me if believing is necessary I DO for the sake of a child! may god have mercy on a small child and her loved ones for what they have gone through and what is to come.
Jul. 4, 2010 9:00 pm
Prayers of comfort for those who love her, prayers of wisdom for the doctors who care for her, and prayers for her to have a speedy and full recovery and prayers that God will hear off our prayers......
Jul. 4, 2010 9:09 pm
My heart is breaking for this little Angel.I will not forget your story for a long time.I will pray for her,her parents and your family for being there for all of them in great need.God bless you,your family and little Angel and her family.
Jul. 4, 2010 9:38 pm
My thoughts and prayers are with you all. Poor little angel!
Jul. 4, 2010 10:36 pm
May God give her complete health and courage to the loved ones,heartbreaking narration,made me think of the blessings that go unnoticed in our life,many many prayers.
Jul. 4, 2010 10:50 pm
She is covered under God's insurance. I don't usually be so public about my own senses but I have an incredibley strong feeling about this; She is going to be fine.
Jul. 4, 2010 11:24 pm
Prayers sent for this sweet child and may our Heavenly Father give peace and comfort to her family and friends.
Jul. 5, 2010 12:13 am
Cynjne, I believe you. I believe in people's feelings. I get weird gut feelings about stuff here & there, and it did strike me when I read your post that somehow you knew.
Jul. 5, 2010 1:39 am
I don't know exactly why, but I was just listening to this song from Rickie Lee Jones, her "Traffic From Paradise" Album, 8th Track "Running From Mercy" and I felt I needed to post the opening words here in this blog entry. So here goes .... "Oh sacred place that sets my soul alive There's a rainbow above me that the storm clouds hide And kind works will never die Cuz the magic in kindness springs from the love, love, love Little acts of kindness and little words of love Make our earthly home heaven above And there is no sorrow heaven cannot heal A fire within, no cross, no crown"
Jul. 5, 2010 3:05 am
I am so sorry that you, she, her family and others that care about her must go through this. My thoughts will be with her and those who care about her.
Jul. 5, 2010 4:39 am
My face is covered with tears. Thank you for sharing this with us. It is so sad when a young child is ill. I hope G-d gives you and her parents the strength to weather the days ahead.
Jul. 5, 2010 5:10 am
My thoughts are prayers will be with all of you.
Jul. 5, 2010 5:31 am
I'm going to UVAMC on Thursday, leaving Spotsy at 0 dark 30! Have copied every single one of your comments so I can share them with the parents and plaster them around Kira's room. I don't want there to be any doubt in anyone's mind that this baby has a loving, caring, praying circle of people we've never met that have made a profound presence in our lives. You're an amazing bunch and we are blessed because of you. You will never be strangers to us! I feel in my heart that there will be a complete healing simply because I cannot picture her not being here. The doctor that did her first induction came to her room to pick her up to take her to surgery came back afterwards and told the parents that Kira was "special"! That, coming from the doctor, made us feel that he, too, knew she would pull through this.
Jul. 5, 2010 6:30 am
That is going to be a hard visit SGMA- know we are thinking, praying and sending out positive thoughts to uplift everyone. Peace and blessings..... Jan
Jul. 5, 2010 7:06 am
Mommy has to go back to work and i offered to go stay with my girlfriend. I have no doubt of the degree of difficulty but I have to remember that I'm not going alone!!! ;)
Jul. 5, 2010 8:00 am
Many years ago, my friend had a grandson with this very cancer. There were many apprehensive days that were always won out through the prayers of many. Today, the medical knowledge and technology is light years ahead of that time. That grandson is now a proud father and soon to be grandfather. Never stop the loving and praying.
Jul. 5, 2010 9:49 am
Dear Southern are all so blessed to have each other. I am a firm believer in the power of prayer, so be assured that there are many being raised for you and your bestest friend et al. Remember, "one day at a time" - don't worry about tomorrow until it gets here. Each day ask God to get you thru, at night, tell Him thank you, and go to sleep secure in the knowledge that He is watching over all of you, then do the same thing the next day, and the day after, etc etc. God bless you all
Jul. 5, 2010 1:43 pm
Wow, I will be keeping you all in my thoughts and prayers! That's a lot anybody to deal!
Jul. 5, 2010 1:48 pm
Hello Southern Gma I am praying that soon you will have your little girl back at home and reading bible stories. Mike & Swiss Phil said it best may the prayers of many give you and this sweet angle,her Mom and Dad the strengh they need during this time and "May God perform his miracle for your littlest bestest friend". Bless all of you
Jul. 5, 2010 2:42 pm
What an amazing bestest friend you have! With such love surrounding this little girl, she will be fine. Stay strong and many thoughts and prayers will be for her from me!
Jul. 5, 2010 2:43 pm
You, your littlest, bestest friend, her family and yours, along with her medical team will be in my daily prayers. My heart just aches for you all. You are a God given gift to her parents and will be such a comfort. God bless you all.
Jul. 5, 2010 3:34 pm
There is a reason the two of you and the two families were brought together. God and his angels arrange this, this I am certain of. You need your littlest bestest friend and she needs you. You will continue to be with her during her hospital stay and by doing this helping her parents out so much. It is so sad that parents have to worry about working during a time like this, my heart also breaks for her mother and father. But god knows that you will be there and he sent them to you. You are their angel as she is yours. I will say many prayers. God bless you.
Jul. 5, 2010 5:35 pm
Thank you for putting things in perspective for me. I've been sitting here complaining about the heat, and that my ac was broken and my DD was being not so nice today. My prayers are with you and your angel's family. Please keep us posted. I'm going to hug my DD when she gets home, and tell her about your best friend. Thank you and prayers from New Jersey. Mag
Jul. 5, 2010 5:45 pm
As I was sitting here reading through this and reading the comments, it seems that my feelings were what Janet wrote EXACTLY. There are no accidents, there is a reason for this and there is a reason that you live so near each other. God Bless you all, Gma Gail, Gpa Buddy, mom & dad, and most of all the bestest little angel.
B L 
Jul. 5, 2010 8:03 pm
I pray for strength, peace, joy, and healing for each one of you. God bless and keep you. What a blessing and ispiration you are. Go with God.
Jul. 6, 2010 4:59 am
I have copied everyone of these comments for mommy and daddy so they can gain as much strength from them as have I. For those of you who went to ttp:// and left messages, please know that mom and dad have seen them and they are just amazed and in awe at the feelings you have expressed for the healing of their baby. Update: I spoke to mommy last night. Baby Kira is now feeling the full impact of the chemicals being given by IV drip 24/7 for 4/5 days. She is very irritable, which is "normal" according to medical staff and extremely uncomfortable. Her favorite place for sleep and comfort is on her daddy's chest. We are told that if she survives the first 2 weeks of this dynamic onslaught and induction of chemicals, she has a good chance of pulling through it. IF? IF? Really? No "if's" welcome here. Positive thoughts only and Lord know you guys have offered plenty of those. For your prayers and genuine concern we are so appreciative of your time and the moments you keep this baby and her family before the greatness that is Our Father Who Art in Heaven! Love and Hugs, Gail
Jul. 6, 2010 5:10 am
Sorry. I didn't cut and paste the address properly...
Jul. 6, 2010 5:21 am
Lots of prayers and positive thoughts going out. Gma, I want you to know how much your blog touched me. I know you're probably way too humble to realize what a blessing you are to this family. I don't know them but I am so grateful they have you to help them through this. Every family going through something like this should be so lucky to be surrounded by such love and devotion. You will all be in my prayers. Give your angel a hug from your AR family please.
Jul. 6, 2010 5:49 am
This story jut breaks my heart. I will be praying for you and this beautiful angel baby! Be strong G'ma Gail- this family is lucky to have you!!!!
Jul. 6, 2010 5:49 am
Please have your friends contact the Leukemia & Lymphoma Society. They have many programs that can help. They even have a co-payment/toll/mileage/parking reimbursement program, not to mention the latest information. They are there to help, please contact your local chapter! A prayer has been said, not just for your little one, but all of you. What an amazing friend you are.
Jul. 6, 2010 6:10 am
Skylarsmom, thank you. I've copied this information and will investigate to see what they offer. When you're hit with such devastation it is so wonderful to have someone else do your thinking for you. Seems that part of our brain gets turned off when tragedy hits. Thanks for the "poke", the information and your comments!!
Jul. 6, 2010 6:26 am
Oh my, there are just no words to express my heartfelt sorrow for the parents and for you Gail. Please know we're thinking of you here in Pensacola.. stay strong.. this too shall pass.
Jul. 6, 2010 9:16 am
Near and dear to my heart - my friend has a beautiful 10 month old with Downs, and she is just the sweetest thing! She had even mentioned that they tend to get leukemia, but I never thought it would be so young...Thoughts and prayers to your sweet little angel!
Jul. 6, 2010 9:28 am
May God Bless and Keep your family!
Jul. 6, 2010 10:50 am
Reading this blog just broke my heart. I just said a prayer and will continue to pray each day. May God Bless all of you and especially your bestest friend.
Jul. 6, 2010 11:30 am
My most sincere thoughts and prayers are with you and her family right now. Ive experienced the power of prayer, im a firm believer. This too shall pass.
Jul. 6, 2010 11:34 am
Beautifully written story! I too suffered a similar situation and the best piece of advice I received was, LET GO AND LET GOD. Prayers and hugs to your family!
Jul. 6, 2010 11:58 am
The power of a praying community... just got a text from Tracy (mommy) and said, "Kira is doing very well this AM. She was playing and happy when I came into the room. Her fever is down from 102 to 98"! Mom and Dad are staying at Ronald McDonald House so they can take turns being with the baby and being able to relieve each other so they can get some rest. Did I mention the power of prayer? We'll keep doing what we have to do knowing that prayer will do the rest! Thanks all.
Jul. 6, 2010 12:58 pm
Ah sweet angel. You are all in my prayers.
Jul. 6, 2010 2:48 pm
Praying for Princess Kira and all of her loved ones and medical team.
Jul. 6, 2010 2:48 pm
Praying for Princess Kira and all of her loved ones and medical team.
Jul. 6, 2010 4:38 pm
I am just heartbroken for you all. Please know that you are all in our thoughts and prayers. I pray for peace and comfort for you all, but may God bring that sweet little girl healing and strength. I am so sorry.
Jul. 6, 2010 7:23 pm
Heart is broken but after the tears for the "wrongness" of life we look for the "rightness" and it is with you SG. You are a godsend to this family right now and I hope we as your "AR Friends" we can be there for you. Many thoughts and prayers for strength for kira and her family and friends at this trying time. Prayers for the medical staff for strength and decision making they can do for her. Thanks to our Heavenly Father for each day we have Kira and for the strength he has endowed her with (and the sparkly eyes!). God Bless you all.
Jul. 6, 2010 7:28 pm
I have no words, other than I hold all of you in my thoughts and prayers. May everyday for all, be lived with joy in the present.
Jul. 6, 2010 7:49 pm
Dear Gma, Gpa, their DD, Littlest Bestest Friend Kira, and Kira's Mommy and Daddy; I want you to know that prayers are on their way to you all. May our Lord take care of you all as you all care for each other. You are all blessed and you are an inspiration to me and I think everyone who sees this. Hugs and prayers to you all.
Matt's Mom 
Jul. 6, 2010 9:15 pm
This is the first blog entry I have read here at AR and probably the most touching blog I have ever read. Your Bestest Friend is in my prayers. I am praying for complete healing for her and strength and comfort for her, Mommy, Daddy and you and your family. I pray that God will be glorified in all that happens in the coming days, weeks and months. Thank you so much for sharing Kira's story with us.
Jul. 7, 2010 3:33 am
The first posting I saw of this was the Caring Bridge site. I had no idea what kind of background you experienced. My heart goes out to you! Certainly, you have my prayers!
Jul. 7, 2010 4:16 am
For the "Caringbridge" suggestion, I can't thank you enough. Family, friends, and the most caring, loving AR Folks I've ever encountered have all come together at this site. Tracy and John (parents) are loving it. Tracy said it was exactly what she'd hoped for but it wouldn't have been done at all if YOU hadn't suggested it!! Last night, as I was talking to Tracy, she put the phone on "speaker" and Kira recognized my voice and Tracy said Kira kept looking in the phone and then around the room trying to figure out why Gramma Gail was in that tiny black thing and not in the room with her. She was talking to me and I could hear her laugh and if only she knew what part of me WAS in that room with her. I was with her and so were you. We had a great time! Love and hugs, Gma Gail
Jul. 7, 2010 5:28 am
Gail: Kira is so lucky to have you. This blog is the saddest and happiest I have ever read. It is amazing how a special child can make life so bright. Our prayers are with all of you. Please keep us updated.
Jul. 7, 2010 5:32 am
God Bless that little girl, her family and you. With all that love around she will hopefully beat this thing and never remember any of the pain and nastiness of it. My prayers are with her and her family and you!
Jul. 7, 2010 7:21 am
Our thoughts and paryers are with the little girl, her family and your family. I hope everything is going to be okay. Sometimes life is unfare. But still... keep faith in GOD.
Jul. 7, 2010 8:11 am
What a special bond the two of you have- I'm so glad you have each other! I'm praying for all of you- God will get you through this. &hearts;
Jul. 7, 2010 8:33 am
Love is a powerful medicine, and this little girl sounds well loved. My prayers are with you all.
Jul. 7, 2010 9:07 am
My thought and prayers are with you.
Jul. 7, 2010 9:17 am
ill be praying for all of you, for your strength and faith as well as her Mom and Dads throughout this difficult time. i know what its like to have somebody so close to your heart be sick so ill be doing everything i can!
Jul. 7, 2010 10:18 am
I normally don't read the blogs but saw the title and just HAD to read it. My thoughts and prayers are with your Littlest Bestest Friend.
Jul. 7, 2010 11:00 am
Said a prayer for your Littlest Bestest Friend, her family and yours in between my tears. Please keep us updated.
Jul. 7, 2010 1:18 pm
My thoughts are with you at this time...........from Liverpool England.....
Jul. 7, 2010 1:44 pm
I am thinking about all of you now and I will be praying for peace for all of you, love and God Bless
Jul. 7, 2010 1:58 pm
omg, I'll pray for you & and the family. I have a 6-mon old little cookie myself. I know exactly what you're saying. And I think she's lucky to have you in her life as well. God bless!!
Mel K 
Jul. 7, 2010 2:34 pm
Gail, Special thoughts and prayers to each of you. Very special time on my knees with my Heavenly Father as I placed this prayer request before Him. Thank you for sharing this story and for allowing us to join in prayers for this special angel.I will share this with our prayer group at church tonight and we will have additional prayer warriors lifting up prayers.I want you to know how much your blog touched me today and made me realize how precious life is. Special prayers and a big hug to all of you and especially to little one.Praying for peace, comfort and strength for each of you.God bless! Mel
Jul. 7, 2010 3:10 pm
Oh My gosh!!! Tell her she is in my prayers every day> i would have been speachless and probly colapsed on the floor! You are soo strong and give us an up date soon please! God bless
Jul. 7, 2010 3:17 pm
Gail, I don't know what to say. I have cried and prayed for a solid 30 minutes. If only there was something more I could do; I feel so helpless. I will continue to keep Kira, her parents, and you in my prayers and in my heart. Kira sounds quite a bit like my friend's little girl. Many thoughts and prayers from Huntsville are with you all in this time. She is so very lucky to have you!
Jul. 7, 2010 3:46 pm
My prays re with you
Jul. 7, 2010 4:33 pm
I'm printing all of these comments to take to UVA when I go up on Friday AM. Mom and dad are in awe of you taking your time to offer your thoughts and include Kira in your prayers. They extend heartfelt gratitude to everyone of you. I got a text from mommy this afternoon, in which she said, "Kira has learned to shake her head "NO" and seems to have it down to a science"! As far as we know, no one taught her how to shake her head "no"! Kira gets her last induction tonight and will be closely monitored at the hospital for the next 5 weeks and will then begin the inductions all over again. All of us are amazed at how our little super trooper is handling all this. She is truly amazing. Some days, of course, are better than others but when mommy calls and I hear Kira in the background playing or trying to "talk" to me when she heard my voice over the phone speaker, my heart sings. The things you've written here and the comments you made at CaringBridge is absolutely stunning and a great testament to the people we have here at AR. Great cooks is a given; just ordinary, caring, loving people? Priceless!! God bless and Thank You. Gail
Jul. 7, 2010 4:36 pm
Sending in thoughts and love from California! You are lucky to have each other in this difficult time. Stay strong and take care of each other!
Jul. 7, 2010 4:50 pm
with tears in my eyes, and trembly fingers I pray for your sweet little friend. Wow, I never read a blog before in my life, I was just looking for a recipe i seen on this site last nite...God be with you all. Jenny
Jul. 7, 2010 5:13 pm
My thoughts & prayers are with the family. You are definately a special person & you are truely an angel that God has placed in the family's path to watch over their little girl. God bless.
Jul. 7, 2010 5:13 pm
POSTITVE, HEALING thoughts coming your way ***((( HUGS)))***
Jul. 7, 2010 5:56 pm
Prayers are being lifted up from Orange Beach, AL for you and your bestest.
Jul. 7, 2010 5:57 pm
Good wishes for all. What a touching story.
Jul. 7, 2010 6:38 pm
SouthernGma thank you for sharing your love for this beautiful child. Your littlest Bestest Friend is so fortunate to have such a wonderful family and extended family to support her:) I hugged my baby girl today will pray for each of you often. Let Kira's mommy and daddy know they are not alone - positive love and prayers from CA are being sent their way. God Bless you all.
Jul. 7, 2010 7:58 pm
Prayers said and will continue to be said. Please keep us posted!! I'm sending all the positive thoughts and hugs I can to you and her family.
Jul. 7, 2010 8:22 pm
Tears in my eyes as I read this ...I pray for a healing Miracle for this little girl and Gods protection over her and strength for all her family and loved ones........thank you for sharing so we could pray.......
Jul. 8, 2010 5:21 am
Prayers, constant prayers. As a mom and daycare provider of my own angel with DS I understand the joy and pain you are going through. Please know my family is lifting you all up in prayer.
Jul. 8, 2010 7:19 am
Will say prayers for her (and all of the rest of you) and will also put prayer request out to all my Internet prayer buddies for your "littlest bestest" friend
Jul. 8, 2010 7:20 am
Dear SouthernGma, I just stumbled on this today, and I just had to post to tell you my heart is with you and your family. If you can touch so many people in a few descriptive paragraphs, I can only imagine the strength of the reality. Be strong, and please also remember to take care of yourself during all of this. Much love, many wishes for strength and healing, prayers, hopes, etc.
Jul. 8, 2010 7:33 am
Please know that you, Angel Kira and her parents will be in my prayers.
Jul. 8, 2010 7:34 am
Healing vibes and thoughts to your little angel and everyone surrounding her...
Jul. 8, 2010 7:50 am
Lots of healing and hopeful thoughts being sent for your littlest bestest friend, you, and both your families.
Jul. 8, 2010 7:52 am
Miracles do happen. Two happened around me within the last week!
Jul. 8, 2010 9:02 am
Kira, her parents, you and your family will all be in my prayers. I will tell my friends to include you all in their prayers as well. If only all cancer victims had this much support... Sending lots of big E-hugs and love.
Jul. 8, 2010 9:54 am
There are no words, but I will pray for this lovely little girl and her parents.
Jul. 8, 2010 9:58 am
Jul. 8, 2010 10:09 am
Praying for your little friend and everyone who loves her..
Jul. 8, 2010 10:14 am
Will definitely say a prayer for your angel! Blessings to you all!
Jul. 8, 2010 10:43 am
Praying for the baby and all of the family and those so close to her. Prayers to the doctors and nurses that they also give loving care. May you all find a way to get your needed rest during this journey. Hugs and God bless you all.
Jul. 8, 2010 10:45 am
Sending prayers and love for this Kira and her family & friends from the Gulf Coast!
Jul. 8, 2010 10:46 am
Sitting here at work reading your story and I have tears streaming down my face. She will be on our prayer list at my church this sunday. And I will hug my three year old extra tight.
Jul. 8, 2010 12:02 pm
Love the photos - how CUTE is she!!!!!! Thanks for putting a face on our prayers SGMA!
Jul. 8, 2010 12:03 pm
Oh Gail, what a precious little sweetheart. My thoughts are with you each day. Love & hugs girl &hearts;
Jul. 8, 2010 12:06 pm
What beautiful pics! Thanks for sharing them and I'm glad she is doing so well!
Jul. 8, 2010 12:08 pm
Thanks for sharing the pics! Glad she's is doing well! What a cutie-pie!
Jul. 8, 2010 12:17 pm
Great pictures!!! Still praying :)
Jul. 8, 2010 12:24 pm
What beautiful bestest friends you both have!!!!! Sending all good thoughts and wishes directly to you all, and praying that sweet Kira gets well soon. God Bless.
Jul. 8, 2010 12:33 pm
What a sweet angel she is! Prayers coming from California. You can all do this - as you said, One day at a time. Bless you all.
Jul. 8, 2010 12:55 pm
She is ADORABLE, thank you for sharing pictures, she's soooooo cute.
Joyce Rose 
Jul. 8, 2010 12:56 pm
Father, in the precious name of Jesus, please wrap your loving arms around this "littlest, bestest friend," (as she is known), make your presence very real to this little angel and her family too. Father, we know You are still in the healing business, so, if it could be Your precious, place Your healing hand on her and heal her in the Name of Jesus, and we'll give You the praise, honor, and glory, for it's Your precious Name we offer this prayer...and everyone says, AMEN, and AMEN!! Joyfully in His service, JoDee Rose, Florida
Mel K 
Jul. 8, 2010 1:39 pm
Gail, Thanks for the update and for the photos of this beautiful angel. Her winning smile has been shared by all of our family as I called everyone to see the photos and hear update. Prayers will continue to be lifted, special thoughts will be with you and the family.May God continue to be with all of you and keep Kira in His loving embrace. Loving prayers and a big hug,Mel
Jul. 8, 2010 1:48 pm
What a sweet adorable child. Prayers are coming her way. You are a fabulous neighbor SouthernGma.
Carol Thompson 
Jul. 8, 2010 1:54 pm
Jul. 8, 2010 1:54 pm
Kira is a little angel and she will be in my prayers and thoughts daily. Your story has really touched my heart, please keep us posted on Kira. Give that cutie pie a hug for me.
Jul. 8, 2010 2:06 pm
Well, I can finally see my keyboard to type. What an adorable child. I will be adding her and her family to my prayer list. Please keep us updated on her progress. Blessings and hugs to all.
Jul. 8, 2010 2:45 pm
She is a precious girl sent from God!! You are a lucky family to have her in your life. Grandma you are doing a great job (also mom & Dad)!! I work with special needs children! Give them all the attention you can give them!! God bless and I will say a prayer for Kira!!Keep reading and helping her to learn and grow each day!!
Jul. 8, 2010 4:07 pm
My heart goes to every one of you guys. Such an adorable little doll, she's surely here to spread more happiness in the world. I will keep this baby and her family (birth and extended!) in my prayers.
Jul. 8, 2010 4:13 pm
Thank God for that beautiful little girl. Many passionate prayers are flowing from my heart for her. I was just feeling down about some little things in my life and looking for a macaroni and cheese recipe when i saw a link to this post. I'm so blessed to read this story. I don't think I'll ever forget the way you describe your granddaughter and the love I can feel in your words for her. Have faith. God is certainly in control and He's with you even now. I'll continue to pray for her, you, and your family. Thank you so much for sharing.
Jul. 8, 2010 4:39 pm
That little girl is absolutely adorable!! Thank you for sharing her story with us. Just looking at her face tells me she will overcome this, she looks like she has an amazing spirit. We will add our prayers and good wishes to you and her family and all those caring for her.
Jul. 8, 2010 5:47 pm
Thanks for the photos and update. We'll keep praying!
Jul. 8, 2010 7:17 pm
Chills....tears.....prayers. ALL of you take care.
Jul. 8, 2010 10:14 pm
Your bestest friend is such a beautiful child-so sorry to hear that awful dx...but, know that the power of prayer is very strong, & the members here have very strong voices. I will be adding my prayers from CA for all involved in the care of this sweet little angel.
Jul. 9, 2010 2:46 am
I thought I could not shed another tear today, but I just read about you and Kira and the river of tears started all over again. I lost my best little buddy, Digby, a 13 y/o small bichon on 7/5. His sister and I have been crying ever since--and now the tears started again when I read about your bestest friend. My prayers are for all of you especially this precious baby. I know that God will lead you all through this heartbreak, and I pray that His healing hands will hold Kira to His heart and cradle her in His arms as He heals her. What prompted me to read your post, aside from the obvious, is that I also got my friend's baby girl when she was eight weeks old; (she is now four months old); in addition I, too, am a Savannah Nana of eleven grandchildren. I offered to take care of their baby because they could not afford day care. My one friend thinks I will get my heart broken, but I doubt that. It feels more like a blessing having her here with me during the day and also a privilege that her parents are allowing me to have some small responsibility for her in their time of need. I also thank God that my husband doesn't object! But this is just a small coincidence -- nothing like what you are going through with Kira. I know you feel as much love for her as her parents do and that your heart hurts terribly right now. God bless you for all you have done for this family and may He hear and answer your prayers as well as those from our AR family! I hope you know that you really are a very special Angel!
Jul. 9, 2010 8:51 am
My prayers and thoughts go out to you and your family! I have to say although this is heartbreaking you are so upbeat and positive and I think that is a wonderful way to be. Know always that He is with you and will stand beside you through it all! Again best wishes on a full recovery...
Jul. 9, 2010 11:12 am
Your angel is beautiful, and you will all be in my prayers. Anna
Jul. 9, 2010 11:45 am
Just wanted you to know that we are putting your little angel on our prayer chain at church as well as several other prayer chains. Keep us posted - she will pull thru with flying colors by God's grace! Our love and prayers will be with you! :)
Jul. 9, 2010 12:00 pm
I will hold you all in my prayers Gail. Having been so moved by your story of Kira and her family I know that God is watching over all of you. You have nothing to fear. God bless you.
Jul. 9, 2010 1:08 pm
She is the cutes little thing! i fell like i personally know her! and i Keep praying!!!! god bless
Jul. 9, 2010 1:22 pm
Hugs xxoo
Jul. 9, 2010 1:29 pm
She's absolutly adorable! I get mad at people who say that downsyndrome people are "dumb" (I HATE the word , no offense), and that they have no worth or place here on earth. God created them (like he created me!) and loves them just the same. They see the world completely different them we do -- And I love getting to know these people! My great-uncle had downs -- he recently died. I could never express what a blessing he has been to my family! I will miss him --- but back to your dear lil' friend - I'll be praying! XO from PA! &hearts; KC
Jul. 9, 2010 1:29 pm
*I hate the word ""* was what it was supposed to read :)
Jul. 9, 2010 3:08 pm
I am so sorry to hear this. I will pray for this little angel to get well, as well for the family. Loyally Gloria UEL (Canada)
Jul. 9, 2010 4:05 pm
Hi Gail, You are an angel yourself and I must add that your littlest best friends mom and dad are so lucky to have you and your family for a sitter. Your blog made me cry all throughout my prayers to Jesus. With so many of us praying for your littlest bestfriend nothing will happen to her. Just keep us posted with her progress. She will be in my prayers everyday!!
Jul. 9, 2010 8:25 pm
She is such a cutie pie!! So glad to hear that she is doing better!
Jul. 9, 2010 9:40 pm
What an amazing little angel and what a friend you and your family are! As a mom of 2 year old twins my heart goes out to you all and I pray that your girl has a perfect recovery, what a lucky little girl to have such amazing people around her.
Jul. 10, 2010 5:33 am
Saying many prayers! I loved reading about you & your very special friendship ;) I pray that everything goes well. God bless all of you. Hugs & prayers <3
Jul. 10, 2010 5:42 am
What a beautiful child and what a beautiful gal you are. You are such a blessing to their family. Keep the faith....
Jul. 10, 2010 6:24 am
This is such a heart wrenching story, if there is any way that we can help at all let me know.
Jul. 10, 2010 6:34 am
We will be praying for all of you. may God be with the sweet little one and all of youhat love her.
Jul. 10, 2010 7:16 am
praying for all of you God Bless
Jul. 10, 2010 8:17 am
When my kids were young, they had the great fortune of having a third "gramma"- their babysitter. Just as you feel the needs of Kira, so did she feel the needs of our kids. She was one of the most loving influences of my kids early lives- just as you have been and will (I'm sure) continue to be. There is never enough thank yous for people like you, so we offer our love, prayers and support.
Jul. 10, 2010 8:45 am
What a beautiful child surrounded by so much love. Very touching and I will add my prayers, as well.
Jul. 10, 2010 9:46 am
My thoughts and prayers go to little Kira and her well wishers. May she have a complete recovery and lead a healthy normal life. May God be with her and her family. Thank you SouthernGma for sharing this heart wrenching experience.
Jul. 10, 2010 9:58 am
As a grandmother of 6 and great grandmother of 8, thank you so much for a story of such love. My love and prayers to you all.
Jul. 10, 2010 11:01 am
This is a beautiful child who is a gift from God. I am a Christian who believes in miracles. I am praying for one for this little angel. The Word says that "He will never leave me or forsake me" that said, God's will be done. Our family will continue to pray for this precious child. God bless her parents and you all who are helping and supporting them. You are doing God's work!
Jul. 10, 2010 11:42 am
Prayers for Kira, for her parents, for her doctors and nurses, and for you, generous soul, are coming your way from Massachusetts. I hope you have some encouraging news soon.
Jul. 10, 2010 12:26 pm
My heart goes out to that sweet little angel.... She will be in my prayers as well as her parents and those who love her! I truly believe in the power of prayers:)
Jul. 10, 2010 3:29 pm
What a baby doll! Too cute!! Prayers here too.
Jul. 10, 2010 5:11 pm
SouthernGma, thank you for sharing this story with us. I am also sitting here with tears in my eyes, our prayers will continue to go out for her and all of you that are taking care of her. Please give her hugs and love from all of us here on AR!
Jul. 10, 2010 5:15 pm
Jul. 10, 2010 5:50 pm
I cannot get this lil' angel off my mind. God won't let me forget to pray for her! I wish I could just come give her a squeeze. God bless this precious little girl!
Jul. 10, 2010 6:16 pm
Your story made me smile and laugh and then my heart sank, and yet I still smile because your families have a special little angel that has blessed you! She's beautiful my family will be praying for her and the doctors and nurses who's healing hands come into contact with her! Blessings always!
Jul. 10, 2010 9:35 pm
Thanks for giving me the opportunity to pray. I told your story to many people here and they all send you their greetings and prayers saying salamet-ha Inshallah. That means we hope for her recovery by the will of God. The fact that He has given her the illness and chosen to make her better says a lot for how special she must be to you all. Love and prayers frpm Jordan in the middle east.
Jul. 10, 2010 10:57 pm
This is such a heart breaking story to see such a beautiful, happy child have to endure something so painful. No child (or adult for that matter) should have to go through something like this. But in keeping with that, I believe everything happens for a reason and this fight will only make her stronger! My very very best wishes to her and I hope that she can return to home soon healthier and happier. It's great to see her smile even though she is going through so much! My love and thoughts to her and her family! Stay strong!
Jul. 10, 2010 11:51 pm
She is precious! Your little angel, her family as well as you and your family are in my thoughts and prayers. How lucky she is to have you in her life. (((HUGS))) from SW Pennsylvania.
Jul. 11, 2010 5:39 am
What a beautiful little one God has placed in your lives! I sat down to find a recipe for our Sunday dinner before going to church this morning and saw your blog. It is my honor and priviledge to lift this family to our Lord. I had a special child 21 years ago for 5 short months and know what a blessing they are. And I know that our God meets all our needs. I will share this story with my friends on facebook and ask for their prayers too. Please keep us updated. Your sister in Christ in Kentucky.
Jul. 11, 2010 8:11 am
What an amazing little soul in can see it in her eyes! Prayers for everyone. (she looks like a fighter, one who will fight with a beautiful smile on her face)
Jul. 11, 2010 9:15 am
Never did I expect to read a blog such as yours on a recipe site. I am feeling very saddened for what you are all going through. I too have gone through this with a close family member (A.M.L.). You are all in my prayers. I believe that God never gives us more than we can handle, and I know he is there with you. Prayerfully, Jane
Jul. 11, 2010 11:03 am
You can see the joy in her spirit through her beautiful smiles in the photos, what a precious child. Praying continous miracles over her for healing and a long healthy life, thank you for sharing such sweet photos of her ?
Jul. 11, 2010 11:25 am
Jul. 11, 2010 11:33 am
Hi Gma! I have been off of AR for a while and have just recently started checking back in. I am praying for all of you! My daughter spent time in the UVA PICU. She had open heart surgery at 1 week old. They are wonderful there. God blessed this family with a special angel who will always see the world through clearer eyes. She will be the one to help you through this terrible ordeal. I will continue to pray for you all! Patti in Richmond VA.
Jul. 11, 2010 3:36 pm
"Gma" you're the best! You are making such a difference in this little girls life. All the best to you, the little Angel and her family. Vancouver, BC, Canada.
Jul. 11, 2010 6:59 pm
Dear SG, My prayers are definitely with you. You are a very special person, in that you have reached out to this precious Child of God, although many wouldn't. Downs kids are awesome! I have had the honor of knowing several, and have felt the recipient of their love many times over. May the God of Peace be with you, Kira, her parents, her extended family and your precious family, as they are willing to let you leave home to be with Kira. I truly believe that God has special plans for Kira, plans that we know not, but He does! Know one knows how many of the hospital staff, and doctors will look to the Lord in a different way than they ever have before, as a result of watching Him work through Kira and her "entire global family". God bless you all!
Jul. 11, 2010 8:15 pm
your story is deeply movish i could do something,moving, i wish i could do more, you have put my life into perspective xoxo god bless
Emi M 
Jul. 12, 2010 6:54 am
my family will pray for you.
Jul. 12, 2010 8:35 am
SG: What a beautiful girl! Thanks for taking time out of your busy schedule to provide us with an update. Hope she continues to do so well.
Jul. 12, 2010 8:43 am
Thanks so much for the updates, GMa. I have been keeping Kira in my prayers and will be adding her to the prayer list at my church as well. I was so happy to see that you set up a CaringBridge page for Kira and I've subscribed to e-mail updates of journal entries. Please hug that beautiful little girl for me! And here are loads of big ((((HUGS)))) for you, too!
Jul. 12, 2010 10:51 am
What a cutie, she made me smile. I'll be keeping her in my prayers. Give her ga entle little kiss from me and also alot of hugs.
Jul. 12, 2010 1:47 pm
Thanks for the update and the pictures! Tell Tracy the there is a really great website out there for crochet patterns, it's call Crochet Pattern Central. Here's the link: There are a bunch of baby hat designs on there, hopefully she will something she likes. sending more Big hugs and love, panini goddess.
Jul. 12, 2010 5:37 pm
Thanks Keri. Because of this blog and the site at Caring Bridge, there are thousands of people all over the globe praying for this child. I hope you know how important this is for us and how much we appreciate all that you do to keep our heads above water! panini goddess, it will be me doing the crocheting of the hats for Kira. I'm no expert but willing to try and very happy to find a link that has patterns. Thank you for thinking of us!! ;)
Jul. 16, 2010 8:14 pm
Dear Lord above! Please make this Sweet baby whole again! Give her strength,love,courage,PEACE,relief from pain!! SG, no words,IMO, can express how much you mean to that little girl.She needs you as much as you need her. God Bless you and of course prayers and hugs to Baby Kira. If you looked up the word Cute in the dictionary,Kira's lil face would be there! Love to all of you! Patty
Jul. 17, 2010 9:23 am
Patty Cakes, it's people like you and all the rest of the good hearted souls here at AR that keep us going! Thank you!
Jul. 17, 2010 10:19 am
Dear Southern Gma.. Don't worry too much about the caps, your sweet little angel may just decide she'd rather not wear them! You know how kids are! My daughter lost her hair to chemo, and she was bald and beautiful,and I'm sure Kira will be too! My daughter's hair grew back very very springs! so cute.. God Bless all of you G
Jul. 17, 2010 5:08 pm
Reading your post brought back spine-chilling memories. Getting the "phone call", feeling my knees go out from under me - I feel for your daughter, and your entire family is in my prayers. My husband just passed away from this very disease on May 6, 2010, at the age of 40. The prognosis is MUCH better in children - praying right now for your littlest bestest friend. Hugs for you.
Jul. 18, 2010 7:59 am
Sorry SG - I realize they are your neighbors, not your daughter's family. How wonderful that you can be a "grandma" to this little girl, and such a support to this family.
Jul. 18, 2010 9:33 am
Grammom, you're 100% on point! My mom's hair came out and at the time she was devastated because mother had one glorious head of gorgeous hair, barely any gray, shiny and thick. But straight as a stick. When it came back, it was all those things and CURLY! She had the prettiest head of naturally curly hair you ever saw. I will hold onto your words as a source of encouragement. Thank you!!
Jul. 18, 2010 9:40 am
Love/HateCookin, I am so very sorry for your loss. Only 40 years old;what sorrow you must feel. I lost my mom to breast cancer metastasis on August 18, (will be 10 years ago) and I still ache inside. No, this is not my daughter's family but the mommy is like my daughter and Kira is like my own grandchild. My grandkids adore her and treat her like a sibling. We never quite know the full reason why certain people are brought into our lives, or why they're taken away. I do know that while they are here, we need to cherish every single moment. Please know that I will include you in my prayers to have that precious lonely spot in your heart filled with memories of the good times! God bless. Love and hugs, Gail
Jul. 18, 2010 11:11 am
Thinking about you and Kira today (and yesterday, and the day before that...etc) hope you all are well, Sending more love and hugs from southern IN (actually I'm in Chicago today), LMJ
Jul. 18, 2010 1:09 pm
SMG, have been thinking of you and the family daily as well as others like Mike Harvey. I have friends, an older couple, who make crocheted hats to donate to premmies in the hospital. I thought that was the sweetest thing and their hats are simple. Should I ask for the pattern for you? I'm not a sewing or anything like that person but I could ask for it if you'd like.
Jul. 20, 2010 10:26 am
Thank you for the continuing updates, Gma! I think about Kira often and pray for her regularly.
Jul. 20, 2010 10:40 am
Thanks for the updates, I keep Kira and her whole "family" in my thoughts and so glad you are sensing ALL of our good vibrations daily!
Jul. 20, 2010 11:19 am
Thanks for the update!
Jul. 20, 2010 11:24 am
Thanks for the updates! You are facing this dilemma well! My heart goes out to you! Besides prayers, is there any way we could help? Could we make her some hats?
Jul. 20, 2010 11:45 am
Thank you for the update. Prayers and all my good thought for Kira and her family!
Jul. 20, 2010 1:30 pm
Southern - you know what I feel and I thank you for keeping us all informed.
Jul. 20, 2010 7:13 pm
So glad to see the update & that the news sounds hopeful. Prayers are continuing for all of you.
Jul. 21, 2010 5:24 am
I sit here and read your comments and my heart swells beyond measure. This land that made Me, Me has an army of caring, sensitive, loving, praying people and I am so proud to be a part of it! You guys are the music that sings to the beat of my heart! See todays UpDate. Love and hugs, Gail
Jul. 21, 2010 6:19 am
I saw what you wrote about the decision to not let her come home. Stay strong! When it is meant to be, she will be strong enough to fight off the possible germs during a home visit. I hope the home visit happens soon, though!
Jul. 21, 2010 6:28 am
Thank you for keeping us informed. I think about that little beauty every day and know she is in God's hands. And she has such love around her, what more could that little one need?
Jul. 21, 2010 6:34 am
Really in the big scheme of things, it's just a detour in the road of healing. So glad that the news and prognosis is good. She's a sweetheart and I will keep her in my thoughts. Hugs and total admiration for you and her family Gail. &hearts; and more &hearts;
Jul. 21, 2010 7:01 am
SG: Kira's quite an inspiration. Wish she could have come home. Although staying in the hospital is a little disappointing, you have the right attitude about it. Thank you for the updates.
Jul. 21, 2010 7:05 am
I think about this little angel daily. She is so precious and her smile is radiant and seeing her photos just make my day. Praying that God heals your littlest bestest friend so she can come home and play and sing and just be the happiest little girl possible.
Jul. 21, 2010 7:14 am
Thanks again for the updates, Gma. I, too, think about Kira on a daily basis and pray for healing for her and peace for you and for her family. While I'm praying for Kira, I also give thanks for my own two healthy children. It's frightening how quickly life can change. When you get to see Kira again, please give her a big hug and a tummy tickle from me :-)
Jul. 21, 2010 5:34 pm
This is the beginning of a long tough fight, SG. You've made it plain you'll stay with it for Kira and her family and we'll remain here for you and offer our hope and prayers.
Jul. 21, 2010 6:40 pm
SG- I am sorry you won't have your bestest friend home soon, but I am so happy the doctors are walking on the cautious side of the line. ((HUGS)) to you and your darling GD and prayers continue for Kira and all of you. God Bless.
Jul. 21, 2010 7:08 pm
Thank You for the updates on Kira:) I pray and send my love to all of you during this difficult time - I know how much you would love to bring Kira home to where she is most happy! I can't get this beautiful girls smile out of my mind. And, I have to tell you seeing the pictures of her immediately makes me smile as well:) What a doll! Strength to all all of you and know the prayers NEVER stop over here.
Jul. 22, 2010 2:59 pm
Thanks for another post and the pictures! I'm so sorry Kira can't come home. My uncle fought leukemia last year, and as of a few weeks ago he was in complete remission. I really wish there was more I could do. Sending you all more hugs and love, LMJ.
Jul. 23, 2010 3:29 pm
The Lord knew she would not be coming home and I think he helped you see that she is where she needs to be, this baby girl is beautiful and precious in God's eyes as well as our own. I will be praying that you can rely on him to be your crutch. Watching a child suffer is painfully debilitating, my son is two right now and I cannot imagine. Love & Prayers. AM
Jul. 24, 2010 9:32 am
Aww she is adorable!
Jul. 29, 2010 5:01 am
Wow SG such a heartbreaking story I really ever even read blogs, but I ran across Mike Harvey's and he mentioned you several times so I came to yours out of curiosity and ended up with tears streaming down. This little girl and her family are very lucky to have you in their lives watching over them. You can feel how much love is in your heart for this little princess through your words and I'm sure they don't even come close to actually expressing what you feel. My heart goes out to her and all of you who know and love her. My oldest daughter was diagnosed with Cystic Fibrosis when she was 5 months old and had to stay in the hospital for 2 weeks. We've been lucky in that she has done well with it and not had a stay in the hospital in the 14 years since. I know that it's not the same as Cancer but my point of telling you was because Kira reminds me so much of my Caylie. She was smiling, laughing and so resilient through all of it. I also know how dark it is when you hear a diagnosis that could cut short your child's life. That day and the 2 wks that followed were the longest of my life. It was my daughters strength that got me through it. How can you be sad when they grab hold of you and giggle? It seems as if it will be Kira's strength that sees you all through as well. God bless all of you and I hope you are able to have her home soon.
Jul. 29, 2010 5:02 am
That really was supposed to be rarely.
Jul. 29, 2010 11:24 am
eshomo, wow...65 roses! I learned a lot about Cystic Fibrosis and "fropping" and the great strides made in so many childhoon illnesses. You are so fortunate and I truly sympathize with that dreaded 2 week period. All of the comments posted here and at caring bridge have really given us strength to face each new day with Kira. It's amazing how someone you don't know, someone you've never met and probably never will meet, can simply say they are thinking of you and praying for you and the source of strength it provides. I go back to this blog and read and re-read it and it has never failed to put my spirits on wings and keep me stable during this walk with Kira and I have to admit, I keep you guys close, too! As I said in my update, Thank You just doesn't seem to be enough. For now...God bless!
Jul. 29, 2010 11:42 am
Thanks for updating us, and my continued prayers for Kira and her family. I know God has wrapped his arms around her to protect her and heal her.
Jul. 29, 2010 11:42 am
What a "cutie pie", thanks for the update.
Jul. 29, 2010 11:56 am
Wow..... glad she gets to go home and hope she stays away from any and all germs!!!! She is very lucky to have such a caring babysitter/friend! Keep up the good work of making her laugh! &hearts;
Jul. 29, 2010 12:08 pm
Your and Kira's family are in my thoughts daily. Thank you for the update. I hope things continue to go well. Remember to take care of yourself. Mag
Jul. 29, 2010 1:11 pm
What wonderful news! Keeping my fingers crossed that she will not pick up anything nasty! Such an angel surely deserves a break! My prayers for all of you keep coming your way! God be with you!
Jul. 29, 2010 1:24 pm
I'm so glad to hear the Kira got to come home for awhile! I'm praying she's able to enjoy her time at home with Mommy, Daddy, and Gma without worrying too, too much about nasty germ buggies. Please give her more hugs from me when you see her again!!
Jul. 29, 2010 4:12 pm
This sweet baby is indeed "In the Arms of an Angel" And she has a human angel living 2 doors down. We are still praying all goes well for Kira and her wonderful support system. God Bless you all.
Jul. 29, 2010 5:17 pm
I'm glad she gets to be home for a few days! Thank you once again for the updates, saying more prayers and sending more (germ free) hugs to you all! LMJ
Jul. 29, 2010 6:04 pm
Glad to hear Kira got to make the visit home. Hugs to you & your "family".
Jul. 29, 2010 6:06 pm
Thank you for the update! We keep the family close in thought and prayer!
Jul. 29, 2010 7:22 pm
Thank you so much for the updates. Kira's in my thoughts and prayers daily and I keep checking back just to see how she's doing. From the look of things, she's captured more stranger's hearts than just mine :) I hope and pray that you all stay strong and use that precious grin as a beacon in the rough times.
Jul. 29, 2010 7:48 pm
I swear that is the most precious baby ever. You should package that smile. I would buy tons, and every time I felt down I would open a package and feel the joy. May God keep her safe while she is home and make her better when she goes back for treatment. My heart breaks to think that she should be sick. My prayers are with you and the whole family. God Bless you all.
Jul. 29, 2010 11:09 pm
I am sooo happy that everyone's prayers were answered and she gets to come home for a few days. I'm sure with all of the precautions you have taken she will be fine while she is with all of you. My prayers and thoughts are with you all. God bless.
Aug. 5, 2010 3:19 pm
Hello there! So glad the comforts of home are within Kira's grasp - even for a few days. Praying for her safe and happy stay at home. Thank you for keeping us up to date with her progress. This little angel is never far from our thoughts and prayers. We also pray for her beautiful family (including you and yours:) to remain strong and supported by God's love. Extra hugs for all, Diane in CA
Aug. 13, 2010 1:06 pm
I Have not forgotten about Kira, her family and also yours. Prayers everyday for each of you.
Nov. 19, 2010 6:55 am
Such a darling "littlest bestest friend" Her smile is award winning and just says "I'm here to stay!" I too believe people come into our lives for a reason and I believe Kira has come to you to teach you many things and to be loved by her "biggest bestest friend"!! I hope Kira is doing well now and is home having fun and causing tons of mischief! :) Love & Blessings to all of you!!
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Gail Cobile

Living In
Spotsylvania, Virginia, USA

Member Since
Mar. 2001

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Cooking Interests
Baking, Grilling & BBQ, Frying, Stir Frying, Slow Cooking, Asian, Mexican, Italian, Southern, Dessert, Kids, Quick & Easy, Gourmet

Scrapbooking, Sewing, Gardening, Camping, Fishing, Reading Books, Music

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About Me
Like so many other moms, I had to plan wisely for time to take part in my daughter's school activities. I was fortunate that I could take time off work to be there for her. Now that I've retired and can spend time with my grand babies, I never let an opportunity pass by without camera in hand. Guess that's what started my scrapbooking addiction. Family time, big cookouts and teaching the kids about the "unhurried" side of life is what I'm compelled to do.
My favorite things to cook
I love to bake. The wonderful aroma of a roast in the oven or something wonderful in the crockpot that wafts throughout the house and welcomes my husband when he comes home from work are my favorite things to cook. Being empty nesters I still find it difficult to cook for just the 2 of us. But then, I love being able to share with a neighbor or with the kids to help them with a meal after they've worked all day. Then there are the desserts; cakes, cookies, and pies.
My favorite family cooking traditions
Being an East Coast Tarheel I remember all the times my Gramma let me help in her kitchen from the time I could climb into a chair and onto the table to watch her every move. Those old traditions and downhome recipes are a big part of my life. Comforting soul food from the southland and now and then a crowd pleasing surprise I've cooked up from my collection of church based and women's league cookbooks.
My cooking triumphs
I once had a small catering business I ran out of my home. The menu choices were always popular, well suited to the event and although the work was hard and time consuming, the many compliments and rave reviews always made it worthwhile.
My cooking tragedies
I remember my first attempt at cooking a pot of Navy pea beans which was one of my favorites as a child. I was living several hundred miles away from my mother, the greatest cook in the world, and called and asked her how much milk you put into the beans to make the white sauce. She could never answer me because she was laughing so hard. When she was able to talk, she called back and told me the "milky looking sauce" came from cooking the beans until they were done and the "sauce" would be there. All I had to do was not let the water boil out of the beans! Everytime I cook them I remember that and still can picture my mother's face as she couldn't help but laugh at what I thought was her "miracle bean sauce"!
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