Vegetable soup or how i am learning tolerance.
Jul. 18, 2009 10:08 pm
Updated: Jul. 26, 2009 3:01 pm
hi ya! news continues to be good. some bad things to report. here's the bad ...the cumiden is not yet effective. we need to get a happy balance between her immune system and the blood-thinner. not in sync yet. her doctor is sending blood samples to another hospital where a blood specialist works to check the samples. her doctor said he is THE expert. i like her, she seems commited to helping my wife. its been a trying week. i've begun the process of starting social security benefits for her. she is so much better! she has begun walking at rehab (only) and beginning to feed herself. her left arm is still wrapped. my sister-in-law from chicago flew in today and will spend the week with her. terri is a terrific sister, she will push claire to the limit.i'm so very glad she is her for her big sister! the nurse said they are ready to start sme speech tests. next step would be removal of the trach! claire hates it...i understand. her doctor called thursday and we talked about her progress. this is when i found out about the blood-thinner and how it was affecting her. but the good doctor also brought out the problem of my tater being more mobile. she wants to restrain her in the evenings. i was astonished...my tater is trying to move..go to the bathroom? terrific news! of course, i say restrain her. she still needs an escort to the bathroom, heck..anywhere. she has a portion of her skull implanted in her abodmen (for safe keeping until reinstalled) and she's on a blood thinner. if she fell and hit her head or cut herself things could go dim quick. but i did find it funny, 3 weeks ago i was praying for a twich and now we have to use restraints. a miracle in the making! ok, best news yet...i asked her to move her left hand. she did with her right hand, yeah that doesn't count i tell her. couple hours later, before i leave, i tell her the first thing she moved when she became somewhat cogisnant was her right hand. again i tell her to move her left hand. she does...she kinda spiders it, then releases and does it again. i kiss her. then i kiss her some more. my wife is going to make a nice vegetable soup one day and i am going to remember the kind souls here for your support and wish you could have a bowlful of " vegetable's" soup as well. may you be at peace and love each other...it's all we have.