Every breath she takes.
Aug. 6, 2009 7:55 am
Updated: Aug. 14, 2009 7:15 pm
hi all. i got in from atlanta yesterday after spending the afternoon with claire. i met with a doctor that used a camera mounted on a small flexible tube inserted thru her nose to look at her vocal cords and throat. she has 50% blockage there. another surgery is planned. he will go thru her trach hole and down her mouth and "roto-rooter" out the scar tissue. her feeding and breathing tube, that i allowed to stay in for 3 weeks caused it. i'm beyond agony. i believe i caused this surgery. i knew she heeded more time to heal before the trach surgery. the doctor assures me it is a simple operation. i still feel horrible. her release date is still set for august 17th as far as i know. i'll be up their the 13th and stay for as long as her out-patient rehab takes. it could be a week to a month. she went out with a therapist and 3 other patients to a small mall and ate out at a restaurant. she told me she didn't want to go. she said people would look at her as a freak. i cried after getting off the phone with her and called her nurse and we convinced her to go. i'm going back up sunday and taking her mother if she is able to go. i went back to work finally this past saturday, and i've been productive. i know her spirt is weak now. i explained why i left the tubes in for 3 weeks and she knew i was doing what a doctor, nurse and myself believed to be best for her. its still hard to make sense of that time. the wednesday before her trach surgery, a doctor wanted to know what the medical professionals should do in case she had a heart-attack, seizure, etc. during her trach and feeding tube surgieries. thurday, the next day, is when another doctor says her prgonsis is claire will be a vegetable. claire has still not responded in any way at this point. i felt her vocal cords (throat issue) could play 2nd fiddle to the bigger picture of reducing her blood clots, preventing others, allow for more time to make more blood platets, and become more conditioned to the new blood thinner medicine. i rolled the dice, i feel bad about another surgery, but i still think i made the right call. i hope everything is going great for ya kind folks! claire is otherwise, doing extrememly well and will emerge triumphant! i remember reading about someones lingering foot wound...prayes sent your way! thanks again my friends!